
Caring for a loved one with dementia or Alzheimer’s disease can be daunting There are a variety of things to think about and signs to watch out for when somebody has memory loss.
But dementia caregivers also need to have support and resources themselves. They are often overworked, exhausted and need additional support. This authoritative list of 50 resources for dementia and Alzheimer’s patients and their caregivers will help you navigate the difficult waters of aging and memory loss..
- AARP – This is a nonprofit, nonpartisan organization offering services and information to aging people. AARP offers legal checklists, information on care options, an online community, and a page of local resources and links to medical services, Alzheimer’s programs and more. The organization also offers a Family Caregiving guide.
- Alzheimer’s and Related Dementias Education and Referral (ADEAR) Center – This site from National Institutes for Health offers information on diagnosis, treatment, patient care, caregiver needs, long-term care, and research and clinical trials related to Alzheimer’s disease.
- Alzheimer’s Association – This group offers resources for those with Alzheimer’s and dementia, along with their caregivers. Included is information on symptoms, diagnosis, stages, treatment, care and support resources. The group’s online tools page features an online forum called ALZConnected, e-learning workshops, a planning aid called Alzheimer’s Navigator and more.
- Alzheimer’s Foundation of America – This group offers resources for those with Alzheimer’s and dementia, and for their caregivers. The site offers Caregiving Resources with a free helpline, dozens of fact sheets, free community classes, webinars and more. The AFA also offers a National Memory Screening Program throughout the United States on an ongoing basis.
- Alzheimer’s Prevention Registry – This site from Banner Alzheimer’s Institute gives news and information about Alzheimer’s and dementia. It also offers a Resources for Alzheimer’s Caregivers page.
- Alzheimers.gov – This site from the federal government provides free information about Alzheimer’s disease and includes information on Medicare coverage, treatment options and referrals to local community resources.
- AngelSense – This app provides a way to track wandering adults through their phones. Caregivers can get a view of their loved one’s activities and location.
- Association for Frontotemporal Degeneration – This group, which supports research into brain health, also offers education, information and support for their families and caregivers.
- BenefitsCheckUp – This service from the National Council on Aging will help patients and their caregivers find benefits from federal, state and local programs.
- Brain&Life – This magazine from the American Academy of Neurology provides the latest information about Alzheimer’s, dementia and other brain health issues.
- BrightFocus Foundation Alzheimer’s Disease Toolkit – This site supports research and public awareness on Alzheimer’s and related dementias.
- Caregiver Action Network – This group offers resources for caregivers, including forums and tips.
- Caregiver Nation – This Facebook group offers family caregivers support, information and resources.
- Caregiver Resources & Long-Term Care – The Department of Health and Human Services provides information on resources, assistance, support and government health resources.
- Centers for Medicare & Medicaid Services – This government website will help connect patients and their caregivers with Medicare and Medicaid information, resources, forms and more.
- Cleveland Clinic Healthy Brains – This site from the Cleveland Clinic offers individualized brain health assessment tools, lifestyle tips, news on the latest developments in research and medicine, and more.
- Community Resource Finder – This combined project of AARP and the Alzheimer’s Association provides access to Alzheimer’s and dementia resources, community programs, medical services and local long-term care options.
- Dementia Friendly America – This group offers support for those with dementia and their caregivers. Featured is a list of resources and a toolkit for becoming a local advocate.
- Department of Veterans Affairs – This agency that serves military veterans also has a Caregiver Support Program that offers caregiver training programs, a helpline, mentoring and peer support.
- Elder Rights Protection – This resource center from the Department of Health and Human Services Administration on Aging provides information on rights protection, as well as programs and services related to elder justice.
- Eldercare Locator – This site provides caregivers with connections to area agencies on aging and other local resources for finding respite care, insurance counseling, transportation and other services.
- Family Caregiver Alliance – This site from the National Center on Caregiving provides resources for caregivers providing care to people with a variety of health conditions and disabilities. The Dementia Caregiver Resources section offers guides, tips sheets and caregiver stories.
- Federal Resources for Caregivers – This is a collection of resources from federal agencies.
- Food and Drug Administration – This agency offers tools and tips for those caring for people of all ages.
- Lewy Body Dementia Association – This group works to raise awareness of Lewy body dementias and supports caregivers.
